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Never had anyone to co-relate with. New at that.

Husband diagnosed in late 2018, put on meds. He doesn't sound like the people I see mentioned in a group I finally joined. His biggest problem is vision. He exhibited strange symptoms such as moldings, tops of doors, moving upward. It's hard to understand prepositions. He can't "see" things when there's conversation about it but when he initiates it he seems to do better. He hasn't forgotten faces yet. Short term memory is worse following agitation. Is there that much variation in Alzheimer's patients?

  1. thank you for reaching out. Yes, there can be much variation in how symptoms are exhibited. Alzheimer's disease is a progressive neurologic disease. Everyone's makeup is different. Both of my parents had the Alzheimer's diagnosis. The disease presented itself very differently in the both of them. Yes, they had some general similarities. However, the rate of disease progression was very different in both.
    You mentioned your husband's biggest issue is vision. Has he had a full eye exam? I ask because sometimes with Alzheimer's disease someones actual vision can be intact. However, it can appear as if some's vision is impaired. I have attached an article link below, to an article I wrote. https://alzheimersdisease.net/clinical/my-loved-ones-experience-the-as

    Thanks for being part of our community. Please reach out if you have any questions. Just Keep Swimming...Lynn Marie, "AlzheimersDisease.net Team Member"

    1. I went to a workshop yesterday by a gal who is a spokesperson for the Alz. asso. I learned from the bookmark she gave us that it is a part of the possible symptoms for a victim to not to be able to "see" what they're looking at, for, etc. Such is the case for my hubby. So, painfully, he has lost the ability to read, write, etc. But for those blessed not to have lost this faculty, this sounds great.

    2. Thank you for sharing your findings. I am so sorry that he is having those symptoms. It must be so difficult to manage. How are you doing with this? Scott AlzheimersDisease.net Team member

  2. This was one of my first questions when my loved one was diagnosed. I wondered what to expect and if there were any hard and fast rules and assumptions about the disease. What I found out was that people are different and may have different symptoms, different severity in symptoms, etc. I am not a medical expert but in my own experience this form of dementia looks different on each person. It has been hard for me to predict. Hope that this helps answer your question. Scott AlzheimersDisease.net Team Member

    1. what can I say to him like when he insists on going into the store and I know he would complain constantly about everything, argue with me, etc. We'd agreed he would sit in the car but when we arrive, he gets out anyhow. I can't leave him at home alone.

      1. Thanks for the clarity of the situation. If leaving him at home is not an option, then can he sit in the store and look for coupons or other store deals in publications while you shop. Can you ask him to sit while you get the most time consuming parts of the shopping done and then bring him in on other parts that he might be more interested in (fruit, meat, gardening, etc.)? Maybe he can put together a list of the fruits and veggies he wants to help you with when you come back to get him and you do that part together. Maybe you tell him that your goal is to finish as quickly as possible so that you can both get home and do something else. Scott AlzheimersDisease.net Team Member

    2. Thanks for your caring answer to my question. These options wouldn't work for us as he can't focus on papers, can't read or even write his name, but he is willing to sit in the car with adequate cooling/ventilation at least most of the time. The day I wrote the last question I was particularly frustrated and physically exhausted due to all the circumstances, including that he insisted on going in. I've been having as much groceries as I can delivered to eliminate that problem.

      1. Thank you for the update. We live in a time where almost anything can be ordered online and delivered to the home. That saves a lot of travel and work. Thankful for these. Scott AlzheimersDisease.net Team member

      2. that's a great idea, having groceries delivered. As it's summer now, in most places it's way too hot to stay in the car. My mom doesn't like all the walking. When it was cooler, she could sit in the car and wait. She preferred that. It's not a good idea now. My dad used to wait on a bench in the store near the bathroom. Then he started to wander. I'm glad I can order a few things from Target, and they can put them in my trunk. Plans and options need to be flexible as this disease changes and our loved one changes. I agree, it's so much like when my kids were little. Just when you think you have hit a straight away and can cruise, here comes a curve, another change. But we are here for you, through the straights and curves. Hopefully, some suggestion or anecdote will help you, us or someone. We are all in this same journey with a variety of bumps and turns. Blessings, Kathy M alzheimersdisese.net team member.

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