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Continue to Care for Alzheimer’s Patients

My husband was diagnosed with Alzheimer’s in 2003 and I managed his care for the last 10 years of his life. We battled the storm together and danced in the rain often. We went from managing at home for a few years, then assisted living for 18 months - 2 different homes, to nursing home - 5 years in the nursing home. Along the way, I found compassionate caregivers, but I was considered a militant wife because I was fine-tuned in his care and needs, knowing that I expected his care to be done in a timely manner and was disappointed. Too many patients and not enough staff was a very common statement! I was there 6 days a week from all of his time in the care of assisted living and nursing home. My daughter was there on the one day I wasn’t and if couldn’t be there, she would be. It was the best thing, I was his live partner and would not have it any other way, I was there for him! No regrets at all — I honored my wedding vows, in sickness and in health, til death do us part. He’s been gone for 12 years, but I still am surrounded by family and friends who are now having to navigate the tragic disease, and I am a helping friend who can step in and help them find the resources to get the care their loved ones need. I am thankful for my time with my husband and my doctors and caregivers will help me through at time .

  1. Hi thank you for sharing this with us. I am so sorry for your loss. It sounds like you were able to give him the best love and care and you were able to spend such precious time together. Too many patients and not enough staff, unfortunately, seems to be a common theme these days. I think it is amazing that you are now an advocate for others and can help them navigate through all the weeds. Jill (Team Member)

    1. Thank you for your kind message, it’s my honor to help other family and friends navigate “thru all the weeds” and smell the flowers along the way,
      I was fortunate to have a some very sweet educators along the way.

      1. , It makes me happy that you advocate in his memory, and happy that you are here with us. Do you advocate on a larger scale? If so, you might want to visit our sister site, socialhealthnetwork.com. It has tons of resources and networking opportunities for advocates. - Warmly, Donna (Team Member)

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