I was was diagnosed about 3 years ago, however I felt the symptoms and I knew something was wrong way before it became apparent. I had to stop working, which was very devastating. I had worked at a job for a paycheck since I was 13 years old and at the time I had to quit I was 65. Work had always been my sense of self, my social outlet, my sense of pride. All gone. It was unceremonious. It was during COVID. Working from home. One day I had access to my work login... then it was gone... and then I was gone.
So then my life became all about preparing for what was to come. I set up a trust. Friends, who are my family, offered to be there for me when I am no longer there for myself. I do not have any blood relatives but I do have a small circle of friends that are family by love. This particular couple will and do have access to all of my assets and will be able to seamlessly step in when needed. Everything has been prepared for and taken care of. My funeral arrangements. Check. Preparations to have my cat cared for when I no longer can. Check, check, check, check...
But now what?? I have been unable to find my next "job" to keep me driven and motivated. I have done inordinate amounts of Alzheimer's research. I am currently on Leqembi infusions, I think I go to my 12th one tomorrow. Trying to think of projects to start and complete. Because work was always my social outlet, I struggle developing a new social network since I am an inherently shy person. So I am building up the courage to go to my local senior center. The first step is the hardest and every day I tell myself I will go but cannot quite bring myself to. But I will try again tomorrow.