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Words matter.

What does it mean to you to be a caregiver vs. a care partner?

We'd love to hear your thoughts!

  1. My view is, he term "giver" denotes a "taker" as well. The term "partner" provides a team approach with the needs. No one is boss, we are in this together!

    1. Hi dotty. Thanks so much for adding your thoughts here! Care partner was not a term that I heard of before and so I thought it would be interesting to get other perspectives. I guess, in some cases, it may depend on where a loved one is in their Alzheimer's journey and that the perspective could change over time. Thank you for being here and sharing! Warmly, Patty (Team Member)

  2. To me, a "caregiver" is a professional person who has been trained/certified/educated to care for a person in need. It is usually a paid person who is not related or initially known to the family.
    To me, a "carepartner" is a family member or close friend who has taken the responsibility of caring for a loved one. The two people are partnered with a relationship prior to an illness. The carepartner may or may not be paid.

    1. Thank you for your understanding of these terms. They make sense in the way you describe them. It’s important to all have a common understanding of these terms. Scott AlzheimersDisease.net Team Member

  3. For many years I have considered myself the caregiver because my loved one was at home with me. After it became too difficult to keep him at home due to his wandering off and being up at all hours, I finally decided I needed to place him in a memory care home. Luckily I found a wonderful small neighborhood home, called Goshen. There are only 6 residents including my spouse and he is the only male. The caregivers are specifically trained in dementia care and are certified. They are "true angels." So now I consider myself a caretaker. I visit him weekly and he is happy and safe. I don't have a real preference for the term, but I am just so thankful that there are special places for our loved ones when we can no longer manage them at home

    1. , I'm glad there was a home that feels like home to you both, that is close by. We're glad you're here, and we thank you for sharing. Some time if you would like, it would be wonderful if you could share the story of how you came to the decision, and found the wonderful home you chose on our Stories page. -Warmly, Donna (Team Member)


  4. I don’t think I’d heard the term “care partner” until this post, but have felt challenged to call myself the caregiver in the last few years.
    My thoughts are similar to Price above. I was a caregiver for several years until my husband’s violent tendencies necessitated a move to LTC. Now I consider myself a care partner who works with the team to assist and support my husband in the best way.

    I have also been a care partner for my mom for several years, as I never lived with my mom during her Alz journey, but found ways to support my mom & dad as they navigated her decline. My mom presently resides in same LTC as my husband and I am more involved now as her primary care partner.

    1. , I think, uch like when my children were young (they are both on the spectrum), and we all know that it really does take a village - I enjoyed being a carepartner with the people in his school. Does that term feel more "right" to you? - Warmly, Donna (Team Member)

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