One Of The Odd Things About MemoryAs a grandchild of someone who suffered from Alzheimer’s, I was removed from the day-to-day decision making and doctor appointments monitoring my Poppop’s disease. I was at a stage of...Reactions0reactionsComments1 comments
Things to Do When Long-Distance CaregivingWe visited Daddy often when he was in a nursing facility. No matter how often that was, it never really felt like enough. Life happens, work gets busy, schedules overflow...Reactions0reactionsComments0 comments
Living with Alzheimer's: Tips on Managing Dental CareTaking care of your dental health is an important part of being a healthy person. That includes brushing your teeth twice a day, flossing every day, and regular cleanings with...Reactions0reactionsComments0 comments
Dementia: The Best Laid PlansTo say that my dad was a planner would be...well, a lie. A planner he was not. This could be both a blessing or a curse depending on the day...Reactions0reactionsComments2 comments
Mom's Experience with Occupational TherapyOne definition of Occupational Therapy is a form of Therapy for those recuperating from physical or mental illness that encourages rehabilitation through performing activities required in daily living. Occupational Therapy...Reactions0reactionsComments1 comments
How Are You Treated Differently Since Diagnosis?Receiving a life-changing diagnosis, like Alzheimer's, can be incredibly challenging not only for those receiving the diagnosis but also for their loved ones. Just as you may be adjusting to...Reactions0reactionsComments0 comments
(Closed) Take the Fatigue and Health Survey!The 2020 Fatigue and Health survey has now closed. Thank you for your interest! We are excited to share the results with you soon.Exhaustion, tiredness, weariness... fatigue. We know chronic...Reactions0reactionsComments0 comments
Prepping for Caregivers: Adult-Proofing Your HouseI've often heard about soon-to-be moms "nesting." Toward the end of gestation, these women dive into making fitting accommodations for their new, long-term house guests. They get busy using some...Reactions0reactionsComments2 comments
FDA Makes Way for Experimental Drugs to Fight COVID-19On March 19, the U.S. Food and Drug Administration (FDA) approved the testing of two drugs, chloroquine (hydroxychloroquine) and remdesivir, to treat people with COVID-19. The drugs have been given...Reactions0reactionsComments0 comments
Hurricanes and Health CareWhen my grandmother got sick, my mom would make the six hour drive up from New Orleans, Louisiana, to the little farmhouse in the Mississippi Delta to take care of...Reactions0reactionsComments0 comments
Daddy & Layla: The Importance of Pet VisitsWe are country folks. I grew up much like my dad in rural areas surrounded by vast fields of cattle, soybeans, corn, and cotton. We joke that as children we...Reactions0reactionsComments0 comments
A Taboo Topic: Alzheimer's and the Concept of Death With DignityI have had a lot of time lately to reflect on the journey I watched my dad walk with Alzheimer's, which led to his passing. The journey was horrible for...Reactions0reactionsComments0 comments
COVID-19: Tips To Reduce Your RiskWith all of the news circulating about the novel (new) coronavirus, it can be easy to feel overwhelmed or anxious. This is especially true if you are immune-compromised due to...Reactions0reactionsComments0 comments
What to Know About COVID-19For those living with chronic health conditions, current news about the coronavirus (COVID-19) can be anxiety-inducing. We have questions and concerns about how the virus is transmitted, how it can...Reactions0reactionsComments0 comments
Research for Alzheimer's Drug, Solanezumab, Not Moving Forward After Failed ResultsDrugmaker Eli Lilly and clinical researchers recently stopped a nationwide clinical trial that was testing the drug solanezumab, a medicine that had shown some promise against Alzheimer’s disease. After analyzing...Reactions0reactionsComments0 comments
Avoid Burnout By Taking Time For Yourself I have a hard time saying “no” to things, especially when they are in relation to my advocacy for Alzheimer’s. I know there are caregivers out there who don’t get...Reactions0reactionsComments0 comments
Healthcare Obstacles & the LGBTQ+ CommunityEditor’s Note: LGBTQ+ stands for people who identify as lesbian, gay, bisexual, transgender, or queer. To learn more about gender identity, check out the interactive website The Genderbread Person. Have...Reactions0reactionsComments0 comments
What is the MUSIC & MEMORY® Program?The MUSIC & MEMORY Program helps people with dementia and memory loss by providing them with playlists of music they loved from their past. Familiar music can help people with...Reactions0reactionsComments0 comments
Advocating: Learning to Speak UpI’m not the type of person who makes a scene. I don’t try to draw attention to myself in public. I don’t typically send food back at a restaurant. I...Reactions0reactionsComments0 comments
The Issues Are Different With the YoungI’m going to start this article with an apology. When I think of Alzheimer’s, I think of older folks, seniors. It is an ‘older’ person disease. But in actual fact...Reactions0reactionsComments0 comments