Until You Live It

By DianaB

1 min read

Until you live it...
You cannot know...
The breaking of my heart...
I am trying not to show.

Until you live it...
Don’t judge or give your take...
For I am barely holding it together...
But doing it for his sake.

Until you live it...
Just quietly listen or hold my hand...
For the hourglass that was our life...
Is quickly running out of sand.

Until you live it...
Watch him change with every day...
Trying to hold onto something...
Forgetting how to pray.

Until you live it...
Which I hope you never do...
Know, I do the best I can...
And face each day anew.

This is our story.

Help others feel a little less alone.

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DonnaFA Community Admin
Hi <inline-mention username="CommunityMember514" user-id="5459730"/>, this is so beautiful, and affected me deeply. Thank you for sharing your heart with us. Please know that we are here anytime you need to talk or share. - Warmly, Donna (team member)
1. DianaB Member
 <inline-mention username="DonnaFA" user-id="4213023"/> thank you!
deb2foreveral Member
Beautiful
Scott Matheny Moderator & Contributor
No words. Scott <a href='https://alzheimersdisease.net' target='_blank'>AlzheimersDisease.net</a> Team Member
Lynn Marie Witt, MSOT Moderator & Contributor
Reading your poem, gave me actual goose bumps throughout my body. That very rarely happens to me when I read a piece. Your words will deeply impact many. Thank you for sharing your journey. Just Keep Swimming...Lynn Marie, "AlzheimersDisease.net Team Member"
CommunityMember007e65 Member
You post really touched me. I can relate. God bless you.
DianaB Member
This is a poem I wrote ISOLATION I’m living within his world now, It is so filled with isolation; Sentences he can’t complete, vacant stares, We both feel the desperation! Within our home, both now prisoners, As he remains trapped in what is left of his brain; I long for his touch and smile, sweet shared moments, Now sadly none of that remains. I’ve been trying to pull him back for 8 years now; But he remains lost in a disease with no where, whys or how’s? I hope when he sleeps he finds peace from this disease, While I struggle to pray, please find a cure for him now! 
1. Scott Matheny Moderator & Contributor
 <inline-mention username="DianaB" user-id="5459730"/> Thank you for sharing such an amazing poem that really summarizes how many are feeling with this terrible disease. You are an inspiration in your love and care for him and I appreciate your sentiments. They speak volumes. Scott <a href='https://alzheimersdisease.net' target='_blank'>AlzheimersDisease.net</a> Team member
Kathy Matheny Moderator & Contributor
Wow! I want to save these. So beautiful depicting the heart of our struggle. That's how I feel sometimes, barely it together. You capture this tragic journey so well. Thank you so much for sharing. Your words will resonated with so many. Blessings, Kathy M team member.