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How has your Alzheimer's experience affected the way that you plan in your life?

I have found that as a caregiver that I cannot plan too far in the future and take things a day at a time.

  1. My wife of 37 years was diagnosed with dementia a few years go. I am healthy 75 year old she is dementia 70 year old. My/our plans to travel, enjoy remainder of our lives, are now just surviving effects of Alzheimer’s disease. Sad ending to years and years of work and planning. She has not said “I love you” to me for a year. Even if anyone cares, of what value is that?

    1. I am sorry for the pain and disappointment this is causing you. The planning and work and care, I applaud you for your love for her. Even though she cannot verbalize it, I believe that you are much appreciated. I admire that way you care and it inspires me to do my best for my loved ones. We are here for you. Please stay in contact. Scott Team Member.

    2. that’s so hard. I have learned to make the most of whatever time you have. Today is worse than yesterday, but it’s better than tomorrow. Do the best you can. It’s enough. Blessings, Kathy M team member.

  2. We lived a life of travel. We lived overseas 3 times and our life was full of adventure. I am finding that now the my husband has Alz we will not be able to live that same life. I mourn the loss of this life..And it is difficult for me to be with friends, most who talk about their travels and things they are doing. It makes me sad and also realize how my life has narrowed.

    1. This is so hard. Thank you for sharing. We understand that narrowing. I am sorry that you are having to deal with this loss. Traveling is limited now here, too. Used to love to go places. I loved Switzerland. Scott Team Member

    2. I wanted to circle back and see how you were doing. Scott Team member

  3. I understand how Alzcan change your dreams and plans. I dreamed and planned for us to travel in retirement, instead he was diagnosed at 62 and had to retire early. Today we are 69 and I travel with friends every chance I get because he cannot. His sister, God Bless her, will come to stay with him to give me a chance to get away. I'm lucky to have her step in during these times. That alone keeps me sane. I do mourn the fact we cannot do this together.

    1. Hello. Thank you so much for sharing. Alzheimer's is a heartbreaking disease and changes lives and plans so unexpectedly. Your SIL is a blessing for you to be able to have some help and to get some caregiver relief. It's so important for you to stay healthy while looking after your husband's needs. I'm happy that you can remember yourself and what you need to stay sane. I understand the loss and pain you feel for dreams lost. I'm so sorry Alzheimer's has changed your life with your husband. It's difficult being on this journey with your husband. Shelley, community moderator

  4. Thank you for your reply and for sharing your story with us. I am so happy that other family members have been able to help. That is wonderful. Scott Team Member

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