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How do you deal with your Alzheimer’s daily?

Feel free to express your thoughts of the hardships of dealing with the disease from day to day.

  1. Thank you for starting this discussion board thread. It can be very helpful and therapeutic to share what you are dealing with - the frustrations and the joyful moments. How are you doing today? Sending a gentle hug, Patty (AlzheimersDisease.net Team Member)

    1. today was the 1st day that a young friend we hired came over to spend time with me. It made my morning go much better to have someone to spend time with and talk to. We walked the dogs together and played a game called Ouisi which my husband got for me. I talked to my nurse because I thought I had misplaced my medicine but it was actually time for the medication to be refilled. I also went to physical therapy. So that was a lot to do in one day. Now the dogs and I are going to take a 😴Myliegh will come once a week to spend time with me

    2. , she looks sweet, and you look wonderful (love the hair!). I'm so glad you got someone to help ease the isolation. Will she be coming every morning? - Warmly, Donna (Team Member)

  2. Coping, with help from a Personal Care Assistant that my family hired for me. Most helpful is that she can drive me places I want to go to, now that it's not safe for me to drive anymore.
    Also family bought me an "AngelSense"watch, so they can track me when I go out for walks by myself. It has an "SOS" button so I can call ford help if I need it.

    1. that's so great! It's good to have the mobility and companionship! Everybody wins! You can still do the most you can do, and your family doesn't need to worry. I was trying to find info about wearable tech. Is that like Life Alert? I'm glad for you! Blessings, Kathy M team member.

    2. , just checking in to see how you're doing and how things are going with the PCA. I still love the Angel Sense watch. Have you found that it gives you a sense of security? - Warmly, Donna (Team Member)

  3. New to this forum. I am trying to intuit my way as best I can each day. His episodes are what stress me the most. His dosage in 5 mg/day generic aricept. It is just the 2 of us. His family lives on west coast. We are on east coast.

    1. building a team of caregivers looks different for everyone. My team has a neurologist, a nurse to manage meds, an aide to help me shower safely, a counselor, a social worker, a chaplain, a euchristic minister, my priest, the local senior center and my husband.
      There is help available to people who have a diagnosis of Alzheimer's. You and your love one have to trust that these people will help you.
      It helps my husband to know that he doesn't have to take care of everything.
      It helps me to stay more independent and socialble.
      Take care of yourself!



      @DonnaFA @

    2. , thank you for sharing! - Warmly, Donna (Team Member)

  4. One day at a time, joined support groups and 6 hours a week of respite time

    1. That's so great! Respite helps so much. It's like tying a knot at the end of your rope and hanging on. You feel you can do it! Do you have other helps for yourself and loved one? Bjlessings, Kathy M team member.

    2. , How have things been going? Have you found the support groups helpful? I hope you are still getting the respite time - it is so important when you are doing such intense caregiving. Would love to hear how things have been going. = Warmly, Donna (Team Member)

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