How do you deal with your Alzheimer’s daily?
Feel free to express your thoughts of the hardships of dealing with the disease from day to day.
Thank you for starting this discussion board thread. It can be very helpful and therapeutic to share what you are dealing with - the frustrations and the joyful moments. How are you doing today? Sending a gentle hug, Patty (AlzheimersDisease.net Team Member) today was the 1st day that a young friend we hired came over to spend time with me. It made my morning go much better to have someone to spend time with and talk to. We walked the dogs together and played a game called Ouisi which my husband got for me. I talked to my nurse because I thought I had misplaced my medicine but it was actually time for the medication to be refilled. I also went to physical therapy. So that was a lot to do in one day. Now the dogs and I are going to take a 😴 
, she looks sweet, and you look wonderful (love the hair!). I'm so glad you got someone to help ease the isolation. Will she be coming every morning? - Warmly, Donna (Team Member)
Coping, with help from a Personal Care Assistant that my family hired for me. Most helpful is that she can drive me places I want to go to, now that it's not safe for me to drive anymore.
Also family bought me an "AngelSense"watch, so they can track me when I go out for walks by myself. It has an "SOS" button so I can call ford help if I need it.
that's so great! It's good to have the mobility and companionship! Everybody wins! You can still do the most you can do, and your family doesn't need to worry. I was trying to find info about wearable tech. Is that like Life Alert? I'm glad for you! Blessings, Kathy M team member. , just checking in to see how you're doing and how things are going with the PCA. I still love the Angel Sense watch. Have you found that it gives you a sense of security? - Warmly, Donna (Team Member)
New to this forum. I am trying to intuit my way as best I can each day. His episodes are what stress me the most. His dosage in 5 mg/day generic aricept. It is just the 2 of us. His family lives on west coast. We are on east coast.
thanks for checking! Each day can be so different. Sometimes I think this whole thing must be my imagination. DH is probably waffling somewhere between stages 3 and 4 of the 7 stages. I really mostly try to stand back and give him a wide berth while trying to very quietly shadow him for safety, etc. DH is a big strong minded muscle guy and takes spells of way overdoing all things outdoors and use of ladders and electric tools. Other days he seems quite "absent." I try to get out for a couple of hours a few days a week. Two dogs and church friends are a blessing. Thanks for checking ☺️ , I'm glad to hear things are copasetic. I understand what you mean about overdoing things. My partner has a congenital heart deformity, and ignored little trouble signs that led to him being in the hospital with congestive heart failure, and last week to heart surgery.
We have been David and Goliath on a few issues, and I'm lucky enough to prevail. I know that's not possible many times. Have you thought of maybe asking a friend or neighbor to "borrow" those things that are safety concerns? That might save you some worries and struggles of will.
I'm glad you're able to get some time for yourself, it's really important to take care of yourself because care-partnering is a very trying, exhausting job. I'm also glad you have a good support system, that's important for both of you. Scritches behind the ears to the pups <3 - Warmly, Donna (Team Member)
One day at a time, joined support groups and 6 hours a week of respite time
That's so great! Respite helps so much. It's like tying a knot at the end of your rope and hanging on. You feel you can do it! Do you have other helps for yourself and loved one? Bjlessings, Kathy M team member. , How have things been going? Have you found the support groups helpful? I hope you are still getting the respite time - it is so important when you are doing such intense caregiving. Would love to hear how things have been going. = Warmly, Donna (Team Member)
