For those who have been diagnosed with dementia or Alzheimer's disease, what are you looking for from an online community like this?
We want to create a helpful, supportive, and meaningful space for you. Please share what you would find most helpful in an online community. Are there particular things you'd like to talk about or learn? What kind of support or information would make a difference in your daily life?
I hope to connect with other people who have Alzheimer's and build a network of support
I agree. I was recently diagnosed and would love to talk with others in my same situation. I don’t have anyone who understands how I feel and I’m tired of hearing “don’t think about it so much”! “It will be fine”. Or not understanding that I forget things. 
We are here and understand. I am sending along a comforting hug as you begin to learn and understand more about your diagnosis. Our community is always here, so when you have time, you can connect with our team and community members to share your thoughts and stories and ask questions. 💜
If you don't mind me asking, have you looked into Alzheimer's support groups in your area or online? The Alzheimer's Association has a link to their support group services at https://www.alz.org/help-support/community/support-groups and a 24/7 helpline at 800.272.3900. I want to share this piece from one of our contributors, Kris, who also has an Alzheimer's diagnosis, about an article she wrote in response to her navigating support groups. I feel that it will provide you with some additional insight and support. https://alzheimersdisease.net/living/support-group-challenges.What else can our community do to be of support? Respectfully, Nancy Alzheimersdisease.net Team Member
I would love to go to a support group, if it was in the morning on a Wednesday when my husband could take me and it's really up to me to call the Alzheimer's Association and check it out. I don't know why I have been so reluctant to use this incredible resource. We do raise $$$ each year for the walk and a dear friend is the director of the local chapter. I know this will sound so stupid but I haven't thought of them as a resource of support. I guess I really don't know what I considered them to be other than nice people we donate to once a year and get our flower and purple tshirts from which as I am writing so so ridiculous! I will make a note in my calendar to reach out to our local chapter this week and see the resources that are available to myself and our family for support! Thank you. You know my brain isn't always functioning at its top level...I need reminders all of the time. This was a good one
Hi CareMDay, thank you for sharing. I hope you allow yourself grace and patience as you navigate each day. The support groups and others like them will be there when needed. Maybe when you're ready, you can invite one of your children to join you or your husband if he feels up to it. I understand he is taking it one day at a time, too. Perhaps one of your children, a friend from your neighborhood, or church group can place the date and time in their calendars, remind you of your scheduled outing, and join in if you would like them to.
How wonderful you have been over the years to support the Alzheimer's Association. They are there for you and many others who wish to serve and support their worthy cause. I think of you often and am glad you are here with our community. Sending love and light. Warmly, Nancy Alzheimersdisease.net Team Member
