Tell us about your symptom and treatment experience. Take our survey here.

caret icon Back to all discussions

For those who have been diagnosed with dementia or Alzheimer's disease, what are you looking for from an online community like this?

We want to create a helpful, supportive, and meaningful space for you. Please share what you would find most helpful in an online community. Are there particular things you'd like to talk about or learn? What kind of support or information would make a difference in your daily life?

  1. I hope to connect with other people who have Alzheimer's and build a network of support

    1. I am 55 and diagnosed with Alzheimer’s. I would love to connect with others in a similar situation. I’m

    2. Hello, and thank you for being part of our community. How are you doing these days? Do you have family and friends nearby to support you?

      I understand your need to connect with others with an Alzheimer's diagnosis. If you haven't already, have you looked into support groups at a local senior center or inquired with your doctor's office about support groups?

      The Alzheimer's Association has a 24/7 Helpline for questions and support at 800.272.3900. The AA also has a link on its homepage to look into support resources in your area. https://www.alz.org/help-support/i-have-alz/programs-support. To look into a local chapter you can access it here. https://www.alz.org/local_resources/find_your_local_chapter.

      Our community is always here to connect with and share stories. We welcome questions and provide support; you can even vent if you like. We can help you gain information and feel a connection. We are always here.

      Please let our community know how else we can support you.

      Warmly, Nancy Alzheimersdisease.net Team Member

  2. I would love to go to a support group, if it was in the morning on a Wednesday when my husband could take me and it's really up to me to call the Alzheimer's Association and check it out. I don't know why I have been so reluctant to use this incredible resource. We do raise $$$ each year for the walk and a dear friend is the director of the local chapter. I know this will sound so stupid but I haven't thought of them as a resource of support. I guess I really don't know what I considered them to be other than nice people we donate to once a year and get our flower and purple tshirts from which as I am writing so so ridiculous! I will make a note in my calendar to reach out to our local chapter this week and see the resources that are available to myself and our family for support! Thank you. You know my brain isn't always functioning at its top level...I need reminders all of the time. This was a good one


    1. Hi CareMDay, thank you for sharing. I hope you allow yourself grace and patience as you navigate each day. The support groups and others like them will be there when needed. Maybe when you're ready, you can invite one of your children to join you or your husband if he feels up to it. I understand he is taking it one day at a time, too. Perhaps one of your children, a friend from your neighborhood, or church group can place the date and time in their calendars, remind you of your scheduled outing, and join in if you would like them to.


      How wonderful you have been over the years to support the Alzheimer's Association. They are there for you and many others who wish to serve and support their worthy cause. I think of you often and am glad you are here with our community. Sending love and light. Warmly, Nancy Alzheimersdisease.net Team Member

Please read our rules before posting.