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What factors do you consider when making long-term care decisions?

elizabethsexton_hu

What experience do you have with placing your loved one in long-term care? What factors did you consider, or what questions do you have for other caregivers?

KScall Member

I had the most push back from his family. They don't believe he is as significantly disabled as I have experienced. They also don't want him in a nursing home, but I also care for my son who is disabled, take care of all household responsibilities including light repairs, cleaning and upkeep and have a business where I work 6 days a week. Instead of helping me, they have tried to take over his care on 2 occasions. Most recently they demanded a care team meeting so they could see what medications he is on and what the nursing home is doing for him under the pretense of "we don't get any information." (Not true.) It's been devastating and their responses have been harder to deal with than the actual caretaking.
1. Lynn Marie Witt, MSOT Member
  
  I just ran across your post. Just wondering how you are doing. You are dealing with so much. Just know we care here at Alzheimersdisease.net. if you have some time please reach back out. Just Keep Swimming...Lynn Marie, Alzheimer's disease.net Team Member"
2. DonnaFA Community Admin
  
  , that is a lot tht you were dealing with, ad I'm sorry to hear that his faily was less of a help and more of a speed bump. How are you and he today? Has his family offered help or at least backed off? - Warmly, Donna (Team Member)
zira_mike Member

for alzheimer disease
1. DonnaFA Community Admin
  
  Hi , Just checking in with you - yo see how you were doing today. Were you saying that AD was the criteria, or were you looking for information? - Warmly, Donna (Team Member)