So many questions... very limited answers
The hardest part for me is that there are no black and white answers. This disease has no timeline... the disease leaves no dignity.... the disease leaves you saying "I don't know".
I am with you on this one. When we were raising our children, there were so many books on parenting and a boatload of knowledge and help with child raising. Caring for those with this disease feels like such a hit and miss. I am thankful for alzheimersdisease.net as we build that base of knowledge and information for our community. Thank you for sharing. Scott Team Member
, I remember being in the place Scott mentioned, and I devoured every single book I could because I wanted to be the best mom I could be. My boys are both neurodiverse and they could not be found in the confines of any of the books I had collected.
The best we can do is to write our own, even if it is only in our hearts. Just be open and listen to our loved ones, what they say, and what they don't say. and find our own way through. Please know we'll be there to share the walk with you. -Warmly, Donna (Team Member)Going through this with my husband is the most difficult thing we have dealt with in our almost 40-year relationship. We have raised kids and helped with 9 grandkids. That all seems like a piece of cake in comparison. It is confusing and heartbreaking. But I will keep him home, if possible.
, it is the most difficult thing. I think because both are about shepherding people through experiences. In one case we enrich their lives and have more time, and in the other, ,we enrich their lives and have to say goodbye.
Please know that we are here to share support, resources and just to listen whenever you need us. - Warm (((hugs))), Donna (Team member)
Hello. I wanted to check in and see how you are doing. I hope things are going okay and you can find time for self-care. Do you have support for you and your family? It is honorable and beautiful to care for your husband, but there is help should you ever need to accept it. I recall the day we had to place my father in assisted care. It is forever etched in my mind, but our decision was a family one, and over time, it helped our father and our family to provide him with better safety as he was a wanderer. I wrote a piece about it that shared my family's story about how this decision was best for all of us. https://alzheimersdisease.net/living/making-the-choice-as-a-family. Our community is always here, so join us anytime and let us know if there is anything you may need information or resources about. I am thinking about you and sending along peace and a comforting hug. Respectfully, Nancy Alzheimersdisease.net Team Member 💜🕊️
I just saw your post and wanted to check in on you. Both of my parents had the Alzheimer's diagnosis. I am in agreement the disease left me with a lot of questions.
One thing that was important for me was to advocate for my parents. It was always important for me that they were cared for as the person they were and not the disease process that overtook them. I have attached an article link below, where I wrote on my journey and advocacy for dignity. Hope the article is helpful. Please update us if you can. https://alzheimersdisease.net/living/treating-people-with-dignity.
Just Keep Swimming...Lynn Marie, Team Member"
