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Tell me how Alzheimer's affects you and your speaking abilities.

I was diagnosed with Frontal Temporal Lobe Dementia and was told that it would turn in to alzheimers because it is now effecting my speech. I'm finding out more and more that my mouth has a mind of its own.!! What I'm thinking is not what comes out of my mouth. Is there anyone else experiencing any of that? Being diagnosed almost 2 years ago, the doctor said that I would need 24 hours of care and I'm terrified about my family putting me in a nursing home, I'm only 57 years old and I feel like I'm losing my mind?? Just because my words are not correct!!!

  1. Thank you for your reply. Are you feeling supported? I would love to hear from our community on this. Is anyone else experiencing this as well? Scott Team Member

    1. I just came across your post. I first wanted to ask, how you are doing?You mentioned you were diagnosed with FrontalTemporal Lobe dementia and having difficulty with speech.
      Please know that what you are feeling is understandable with the news you were given and the noticeable changes with your speech. Since you posted have you been able to research more on FrontalTemporal Lobe dementia?
      I have a lot of experience working with and have had family members who have had cognitive issues. Your temporal lobe is being affected. Your temporal lobe has an area of the brain called "Wernicke's area". This area of the brain helps us to understand the meaning of words in both written and spoken language. Wernicke's area is also connected to an area of the brain in the frontal lobe, called Broca's area. Broca's area helps us to produce appropriate speech.
      Also, if your doctor has not mentioned speech and Occupational therapy intervention, you might want to talk with him or her about potentially seeking out treatment. I have provided article links below on occupational and speech therapy. https://alzheimersdisease.net/clinical/occupational-therapy-services.https://alzheimersdisease.net/clinical/role-of-speech-therapy.
      Thank you for reaching out and we would love to hear back from you on how you are doing. Just Keep Swimming...Lynn Marie, "AlzheimersDisease.net Team Member"

      1. I know it is very distressing but hopefully will not be a dramatic change overnight. You have time, to talk with your family and make plans. I agree with LynnMarie. Speech therapy is a great idea. It helped my mom and our family with work-around strategies to her word log jams. You have time and there is so much life in that time. We are here for you and your family. Blessings, Kathy M team member.

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