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I am looking for caregivers with a family member who has visual variant Alzheimer’s disease.

Visual variant Alzheimer’s disease

  1. Hi . Thanks for starting this forum! I know that our team member , commented on another post that you made - we'll do what we can to increase the visibility for your post so that you can hopefully connect with others who have experience with Visual Variant Alzheimer's Disease. In the meantime, can you share what you or your loved one is experiencing? Do you have any specific questions that you are seeking answers to? Looking to help, however we can! Warmly, Patty, Team Member

    1. My husband was recently diagnosed with visual Varian Alzheimer’s disease. He has some issues, but he also has depression and so it’s hard for me to differentiate between what is treatable and what is not treatable I was just wondering if there are other people who have this type of Alzheimer’s, who could give me some ideas about what they’re experiencing, so maybe I can differentiate between symptoms of depression and symptoms of Alzheimer’s disease

      1. my mom was diagnosed a little over a year ago with posterior cortical atrophy, she can see very little and what she can see her brain doesn't know what it is she's looking at

    2. With tears in my eyes, I am hoping to latch on to this. My husband sounds like a victim. When I took him to the neurologist 5 yrs. ago all he said was that he had Alzheimer's and he put him on the two regular (I assume) drugs and dismissed us to family practice. But his symptoms haven't followed the ones I've read about with his biggest problem being his conception visually. We've taken several approaches but until today I'd not heard of PCA. I feel so liberated! I feel that I can put a finger on his disease! I wonder if there are doctors in the area that know about this disease and if it would change anything if we found one.

      1. my mom has pca,have you watched any of the videos on you tube? Teepa snow is one and there is a few more I can't remember right now but I found them very helpful. Sadly I've learned more from groups on fb and YouTube than I have any doctor

      2. , Teepa is amazing! For members who haven't heard of Teepa, she is an occupational therapist, and has long been an advocate for positive approaches to care. She has some wonderful strategies. What have you found most helpful? - Warmly, Donna (team member)

    3. Thanks, I'll check it out!

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