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Spouse with Alzheimer’s

I have no family members nearby and have been in the situation of a husband with Alzheimer’s disease - about stage 4 now - for four years. If anyone else has gone through this experience, I would like to connect.

  1. I'm so sorry that you are on this Alzheimer's journey with your husband right now. It has to be incredibly lonely. Please know that this community is here for you when you need us.
    Additionally, have you looked into support groups in your area. I've talked to quite a few caregivers who find being able to talk to others in the situation very helpful. The Alzheimer's Association, which has local chapters all over the U.S., offers them. They also have a hotline, staffed 24/7 with professionals who can help you connect with these resources and others 800.272.3900. I know of people who have set up support groups independent of an organization as well. May I ask what area you're in?

    1. New Orleans. I have not found a group nearby

      1. Here is a link that provides more info on support groups. There are virtual ones, like Shannon said in the comment above. You might be able to find one through the hotline or one of the websites in this article: https://alzheimersdisease.net/caregivers/support-groups. We're here for you. Warmly, Elizabeth (AlzheimersDisease.net team member)

      2. Hi @Evielu, I would also recommend checking out your area agency on aging. Here is the link to their website - https://www.nocoa.org/national-family-caregiver-support-program
        It looks like they have some caregiver support programs, and senior centers. If you reach out to one of the centers closest to you, they would probably be able to connect you to a support group in your neighborhood. I really hope this helps! Let us know how you make out!
        Amanda (AlzheimersDisease.net Team Member)

    2. I am so sorry that you and your husband are going through this incredibly difficult experience now. I know it can be so lonely. Your husband is truly blessed to have you by his side to love him and care for him on this devastating Alzheimer’s journey. We lost my mom to this disease and it was especially hard for my dad as she declined. Please know that all of us here are thinking of you and that we are here to support you whenever you need us. I see others have responded with ways for you to find a support group and I hope you are able to. Many of us here have had a loved one suffer with this devastating disease, so sadly we can relate to what you are going through. We are here for you. Warmly, Pam - Community Moderator

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