caret icon Back to all discussions

Where is the support for the victims of this disease?

I was diagnosed with Mild Cognitive Impairment almost 3 years ago and I don’t see any discussion for those who are facing this horrible disease.
I see lots of articles and discussions for caregivers but very limited places for this hideous disease to be discussed by the actual people experiencing the battle itself. I don’t want anymore info for everyone except the victims of this horrible condition!

  1. Hi . We hear and understand the frustration that you are experiencing. When our site first started, our community members were comprised primarily of caregivers, but as we have grown, so has the community. We know that we now have people interacting with us who are not only caring for loved ones living with different types of cognitive functioning loss but also friends and family, as well as individuals such as yourself. We're working to create a space and resources for everyone. Two of our contributors have been writing from their personal experiences with early-onset dementia, Kris ( and Holly ( We've also had a number of people share their stories here ( If you're open to it, we'd love for you to share your story, too, and please let us know what kind of information you are looking for. We want to ensure we're providing resources that will benefit everyone. Sending you my best, Patty, Team Member

    1. I am 57 and still working full time and financially support my college aged boys. I have a diagnosis of MCI on record. I worry about what to ask from my employer for a reasonable accommodation other than dictation software. My new young boss is very detail focused. I do my job well, but I struggle with minute details. Things my other bosses didn't care about so I need to learn new habits. Any ideas?

      1. Thank you for sharing your concerns. What are your concerns in asking for a reasonable accommodation? It sounds like you are very good at your job and a real asset at your place of employment. Scott (Team Member)

    Please read our rules before posting.