Ischemic small vessel disease
Hello, I have just been told I have the above and am feeling a little lost waiting for the next step, a Dr's appointment. He has no appointments so they put me on his waiting list.
Hi
, that is incredibly frustrating! Did they give you any idea how long the weight may be? In the meantime, I wanted to share a couple of articles to hopefully answer some of your questions, and prepare you to have questions for your eventual visit:
https://my.clevelandclinic.org/health/diseases/22927-microvascular-ischemic-disease
https://www.ahajournals.org/doi/10.1161/STROKEAHA.123.045102#:~:text=CADASIL%20is%20an%20autosomal%20dominant%20condition%20caused,of%20stroke%20and%20vascular%20dementia%20in%20adults.
https://www.americanbrainfoundation.org/julies-story/?c_src=gg&gad_source=1&gad_campaignid=12376508796&gbraid=0AAAAADiwIXYjRTkrUfvBF-9bBFptYKAmB&gclid=Cj0KCQiAyP3KBhD9ARIsAAJLnnZADfOGBeFi52Tq4gS1mc5nMbqnggVDCxqiiyzbTVt_BRWJF4R6N8QaAsDdEALw_wcB
Please keep us posted and jut shout if we can help in the meantime. - Warmly, Donna (Team Member)Thank you so much..I will look at the info with fresh eyes in the morning..
How long is a piece of string re the appointment.
I had the MRI to see if I had an Acoustic Nueroma which I do not. But this is what they found. I had to send a copy of the letter to GP. I notice on my NHS records they put the Acoustic neuroma, they have not read the record correctly. I rang to check this morning to ask if there were any appointments..no was the reply...they have resent my klinik form for someone to re assess it . So waiting to hear from them..Now they now have the correct interpretation of the letter.
Thank you again Donna. It is reassuring to know I have a place to go for advice etc. Feeling very lost not knowing what it is all about.
Best wishes,
Jacqueline, you're most welcome, Jacueline (((hugs))). I'm glad it was helpful. You're never alone - you have community here, and we're honored to take the journey beside you. We're always here when you need a chat. - Warmly, Donna (Team Member)
