Trapped...My sister and I are the last survivors of our rather (large) family. We are both in our 60s, for the past 5 years my life has been all about...reactions2repliesCaregivingFriends & FamilyTips & Advice
Teeth...Our mom's teeth are beginning to have to be pulled because of forgetting to brush, floss, etc.... at 86 do we look at dentures, teeth that screw into planted posts...reactions1reply
The Ghosts of My Holiday Past, Present, and Future...As the holidays approach, I think of Charles Dickens' Christmas Carol. The ghosts of Christmas Past, Present and Future taunt me. Since being diagnosed with Alzheimer's, my mindset has been...reactionscomments
Growing and Healing With the Changes of the Seasons...Like many, I enjoy listening to the radio in my car. I switched things up the other day and turned the dial from FM to AM. Scanning the stations, I...reactions10comments
How do you know if a parent needs to be evaluated? How can I encourage him or his doctor to work on that?...According to a DNA test, my father and I have a slightly increased genetic risk for Alzheimer's. Interestingly, that was not reported for any of my other siblings, or for...reactions8repliesAwarenessDiagnosisGenetics/Hereditary Risk
The No Good Long Very Bad Day...First, last week I had oral surgery, which, as a person with Alzheimer's is extremely difficult and made me very anxious! After a week, I thought time to get my...reactions15comments
How do you approach pain management for a loved one who has difficulty expressing their discomfort?...Are there any helpful strategies or tools, such as pain assessment scales or behavior tracking? Share with the community what you've tried and what has and hasn't worked for you!...reactions1reply
Self-Care During the Holidays...The holidays can be a strange and difficult time for many of us, but it may be even more so for family caregivers. With all the added pressure of gift...reactions1comment
Help Our Research: Remote Interview Study! Caregiver Mental Wellbeing ($25 Gift Card)...Dear community members, We are a group of researchers at the University of Illinois Urbana-Champaign (UIUC). We are conducting a research study to understand the mental wellbeing needs and concerns...reactionsrepliesCaregivingMental HealthCoping
A Solo Trip With Mom...Traveling with a loved one with Alzheimer's disease presents challenges, whether it's traveling to the store or across the country. We have traveled by van back to our old home...reactions6comments
The Long Goodbye...1970’s we took care of Grama for 6 yrs of Alzheimer’s. I was diagnosed a year and a half ago with it. I feel myself fading away mentally, and I...reactions1comment
My journey with Altzheimer's...I am an 80 year old woman. I was diagnosed with Altzheimers 3 months ago. I am on Memantine. It seems to be holding it at bay. Mine is doctors...reactions8repliesDiagnosisPatientCoping
Mystery Solved...People think because I have Alzheimer's that, I don't know anything! Recently, we hired a housekeeping service and let our beloved housekeeper of many years go. Well, the housekeeper from...reactions2comments
severe speech difficulties in mid stage Alzheimer's...My wife's cognitive functions are fine but she suffers from short term memory loss. Six months ago her voice pitch changed significantly. In the last week she has almost lost...reactions3repliesSymptoms
Falls: An Early Warning Sign of Dementia...Dementia is a group of symptoms that mark the decline of the brain. These symptoms can interfere with a person's ability to do daily tasks. Common symptoms include memory loss...reactions2comments
Navigating Alzheimer's Support Groups...When I was first diagnosed with Alzheimer's I looked everywhere for help. I was in my 40s when I was diagnosed and there were not a lot of people out...reactionscomments
Ideas for holiday season stress...My husband is almost 70 with early- mid (IDK) Alzheimer's. I am 72. We have been under tremendous stress since Hurricane Helene hit Western NC. It seems like we are...reactions10repliesTips & Advice
Contact ...I have absolutely nobody in my life which has led me to pretty much laying in bed 24/7 Any suggestions on how to socialize. I have no transportation either. My...reactions11repliesCopingPatient
For those who are caring for a loved one with dementia or Alzheimer's disease, what are you looking for from an online community like this?...We want to create a helpful, supportive, and meaningful space for you. Please share what you would find most helpful in an online community. Are there particular things you'd like...reactions4repliesCaregivingTips & Advice
The loss of a loved one is hard. Grieving is personal yet so connected. ...What are some ways you navigate grief while paying tribute to your loved one? Share your thoughts with our community members....reactionsrepliesTips & AdviceGrief
