Self-Care During the Holidays...The holidays can be a strange and difficult time for many of us, but it may be even more so for family caregivers. With all the added pressure of gift...Reactions0reactionsComments1 comments
Help Our Research: Remote Interview Study! Caregiver Mental Wellbeing ($25 Gift Card)...Dear community members, We are a group of researchers at the University of Illinois Urbana-Champaign (UIUC). We are conducting a research study to understand the mental wellbeing needs and concerns...Reactions0reactionsComments0 repliesCopingCaregivingMental Health
A Solo Trip With Mom...Traveling with a loved one with Alzheimer's disease presents challenges, whether it's traveling to the store or across the country. We have traveled by van back to our old home...Reactions0reactionsComments6 comments
The Long Goodbye...1970’s we took care of Grama for 6 yrs of Alzheimer’s. I was diagnosed a year and a half ago with it. I feel myself fading away mentally, and I...Reactions0reactionsComments1 comments
My journey with Altzheimer's...I am an 80 year old woman. I was diagnosed with Altzheimers 3 months ago. I am on Memantine. It seems to be holding it at bay. Mine is doctors...Reactions0reactionsComments8 repliesDiagnosisCopingPatient
Mystery Solved...People think because I have Alzheimer's that, I don't know anything! Recently, we hired a housekeeping service and let our beloved housekeeper of many years go. Well, the housekeeper from...Reactions0reactionsComments2 comments
severe speech difficulties in mid stage Alzheimer's...My wife's cognitive functions are fine but she suffers from short term memory loss. Six months ago her voice pitch changed significantly. In the last week she has almost lost...Reactions0reactionsComments3 repliesSymptoms
Falls: An Early Warning Sign of Dementia...Dementia is a group of symptoms that mark the decline of the brain. These symptoms can interfere with a person's ability to do daily tasks. Common symptoms include memory loss...Reactions0reactionsComments2 comments
Navigating Alzheimer's Support Groups...When I was first diagnosed with Alzheimer's I looked everywhere for help. I was in my 40s when I was diagnosed and there were not a lot of people out...Reactions0reactionsComments0 comments
Ideas for holiday season stress...My husband is almost 70 with early- mid (IDK) Alzheimer's. I am 72. We have been under tremendous stress since Hurricane Helene hit Western NC. It seems like we are...Reactions0reactionsComments10 repliesTips & Advice
Contact ...I have absolutely nobody in my life which has led me to pretty much laying in bed 24/7 Any suggestions on how to socialize. I have no transportation either. My...Reactions0reactionsComments11 repliesCopingPatient
For those who are caring for a loved one with dementia or Alzheimer's disease, what are you looking for from an online community like this?...We want to create a helpful, supportive, and meaningful space for you. Please share what you would find most helpful in an online community. Are there particular things you'd like...Reactions0reactionsComments4 repliesCaregivingTips & Advice
The loss of a loved one is hard. Grieving is personal yet so connected. ...What are some ways you navigate grief while paying tribute to your loved one? Share your thoughts with our community members....Reactions0reactionsComments0 repliesGrief Tips & Advice
Alzheimer's Caregiving: Managing Dementia-Related Pain...If you are a caregiver for a person with Alzheimer's disease, you know they sometimes have pain. You may think it is all a part of aging. But you may...Reactions0reactionsComments0 comments
For those who have been diagnosed with dementia or Alzheimer's disease, what are you looking for from an online community like this?...We want to create a helpful, supportive, and meaningful space for you. Please share what you would find most helpful in an online community. Are there particular things you'd like...Reactions0reactionsComments9 repliesPatientTips & Advice
New to caretaking ...Hello. Back in July 2023 my father passed away. I helped him and my mom for at least six years with his health. He was unhealthy since 1996 but I...Reactions0reactionsComments6 replies
Occupational Therapy, It Helps...Occupational therapy? Honestly, I had no idea what in home occupational therapy was. My mother-in-law has benefited greatly by her physical therapist, and I didn't understand why we couldn't just...Reactions0reactionsComments1 comments
Creating Memories: Implementing Hands-on Activities With Dignity...While it has been 2 years since my father's passing, I recall vividly navigating his care. His days and nights traveled in many directions, but that didn't matter much to...Reactions0reactionsComments6 comments
Going Back Home: Ups and Downs...We recently took a long drive back to Buffalo to see our old home and friends. I packed a week's worth of clothes and pull-ups for my mom for the...Reactions0reactionsComments1 comments
Altz.org...I was recently diagnosed with Altzheimers. Mine is because doctors allowed my blood pressure to get to extremely high. Since I am just starting this journey maybe I can help...Reactions0reactionsComments2 repliesPatientCaregiving