Caregiver Tips: What's in your Bag?...Ever since I was a teenager, I have carried a rather large pocketbook with me. With its ability to hold a range of items, this bag became a symbol of...Reactions0reactionsComments5 comments
How to get my Mom diagnosed? ...I suspect that my Mom has early Alzheimer's. She's always been an angry person and now it has intensified! She has hallucinations, is incoherent 70% of the time, lucid the...Reactions0reactionsComments3 repliesDiagnosis
Awful Day...Today my oldest daughter decided that I don't have Alzheimer's and that this last year was all just an act. I have been through hell and have lost so much...Reactions0reactionsComments23 repliesPatientDepression
Coping...My mum has alzheimer's, l have looked after her for 4 years. 3 weeks ago she had a nasty fall (one of many )ended up in A&E , social workers...Reactions0reactionsComments2 repliesCoping
It's Not My Loved One, It’s Al...As a journalist and a book nerd, I read a lot. Add in anything regarding brain science and Alzheimer's and you surely have my attention. So I, of course, consumed...Reactions0reactionsComments1 comments
Song I wrote “I’ll Carry You”...I worked on an Alzheimer’s unit and found it very rewarding. I found love and compassion was the key to understanding. I wanted to share, in song, what I learned...Reactions0reactionsComments9 comments
Traveling Alone With Alzheimer's...It's that time of year when people will be traveling for vacations with family and friends. As a person with Alzheimer's traveling has become tricky. If you are in the...Reactions0reactionsComments1 comments
Medications to Slow Disease Progression...Editor's note: Aduhelm™ (aducanumab) was discontinued on November 1, 2024. It was not discontinued due to safety or efficacy reasons. People taking Aduhelm should talk to their doctor as soon...
Sensory Self-Care for Caregivers...My day-to-day looked really different for 12 years of my adult life as a caregiver to my mom who passed in February 2023. As a former caregiver, I can tell...Reactions0reactionsComments6 comments
Vacations and Alzheimer's?...Our kids are grown up. We have our house in order. Nothing seems to be leaking or falling over. We have a few dollars saved up. The pandemic has abated...Reactions0reactionsComments1 comments
Anyone have experience with Leqembi (lecanemab-irmb)...Leqembi is a biologic that helps target and remove existing amyloid plaques. A member is interested in learning if anyone has tried/has any experience with Leqembi (lecanemab-irmb) and is willing...Reactions0reactionsComments10 repliesTreatment
What's your experience with hearing aids?...Does your loved one wear hearing aids? Have you noticed cognitive improvements with their use or decline without them? What bells or whistles do they have that you really like?...Reactions0reactionsComments3 repliesCaregivingNon Drug TreatmentsTips & Advice
The Better to Hear You With...We know the story of the Big Bad Wolf and Little Red Riding Hood. "What big ears you have," said Little Red Riding Hood to the wolf in disguise! "The...Reactions0reactionsComments1 comments
Tips and Strategies to Help the Medicine Go Down...One of my favorite childhood movies is Mary Poppins. As a child, I enjoyed singing Mary's song, "A spoonful of Sugar" (helps the medicine go down). While Mary's advice can...Reactions0reactionsComments1 comments
How have you made your home safer for your loved one? ...As Alzheimer’s progresses, it is often harder to safely do things around the house. People with Alzheimer’s may forget how to do things safely... what changes have you made or...Reactions0reactionsComments2 repliesTips & Advice
How I Use Television to Engage My Loved One...For most of her adult life, television has been my loved one’s main source of entertainment. Whether it was soap operas, crime dramas, sports, or Johnny Carson, that little box...Reactions0reactionsComments1 comments
Have you or a loved one taken Aduhelm to manage Alzheimer's symptoms? ...Editor's note: Aduhelm™ (aducanumab) was discontinued on November 1, 2024. It was not discontinued due to safety or efficacy reasons. People taking Aduhelm should talk to their doctor as soon...Reactions0reactionsComments0 repliesResearch & Clinical Trials
5 Tips for Traveling with Someone who has Alzheimer's...As someone living with Alzheimer's, I can tell you that traveling with the condition can be hard, especially depending on the stage. Families often ask me for advice and suggestions...Reactions0reactionsComments1 comments
How Do We Get Through This?...I saw my neurologist today, and he ordered a PET scan. It has been about a year since I had the 1st one giving me this diagnosis. In this year...Reactions0reactionsComments3 comments
Dressing strategies and techniques?...As your loved one's Alzheimer's progresses, it can be increasingly challenging to change their clothes. There are many reasons why this might be the case: perhaps they are confused and...Reactions0reactionsComments2 replies
