We're always here to chat, or share information. - Warmly, Donna (Team Member)
DonnaFA Community Admin
Hi , I wanted to check in with you and see how things are going. Have you been able to connect with others with an EOAD diagnosis? - Warmly, Donna (Team Member)
NAC7 Member
Hi Donna. No, I haven’t. I know my case is rare, as I was diagnosed at 55. I’ve been having these new bi weekly infusions with a medication called Lequembi. No changes yet but still hoping.
CommunityMember7c3b3b Member
keep going I am on the same. I have had issues between each biweekly sessions each MRI for me have reflected brain bleed then Brain swelling and possible stroke. But with Gods power I will continue in.
NAC7 Member
I’m so sorry to hear that. I really have not felt any better from the infusions. I think I’m on my 6th one or so? I also have anxiety and depression to deal with. I just pray for the best every day. It’s good to have a circle of support.