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Early Onset

I’m 55 and was just diagnosed with Early Onset Alzheimer’s. Is there anyone here that was diagnosed this early?

  1. Hi , We do have a few members that were diagnosed early. You can check the posts of

    Some members have shared their stories:
    https://alzheimersdisease.net/stories/ageism-and-early-on-set-alzheimers
    https://alzheimersdisease.net/living/andrea-gallant-interview
    https://alzheimersdisease.net/living/accepting-help-with-caregiving (caregiver's perspective)
    https://alzheimersdisease.net/living/interview-nia-mo
    https://alzheimersdisease.net/living/spouse-with-early-onset (caregiver's perspective)
    https://alzheimersdisease.net/living/interview-early-onset

    I hope that will give you some information and connections while you're waiting for feedback from the community. - Warmly, Donna (Team Member)

    1. my name is James Smith. I was diagnosed at 57 but had all the symptoms at 52.

    2. , Welcome, James, we're glad you're here. Have you been able to connect with others with EOAD? We have a couple of articles here where you can find members who share that diagnosis:
      https://alzheimersdisease.net/living/coping-with-early-stage-onset
      https://alzheimersdisease.net/stories/early-onset-alzheimers-and-ageism
      https://alzheimersdisease.net/living/interview-early-onset
      https://alzheimersdisease.net/stories/early-onset-alzheimers
      https://alzheimersdisease.net/living/early-onset-andrea-gallant
      https://alzheimersdisease.net/living/interview-steven-barbieri

      We're always here to chat, or share information. - Warmly, Donna (Team Member)

  2. Hi , I wanted to check in with you and see how things are going. Have you been able to connect with others with an EOAD diagnosis? - Warmly, Donna (Team Member)

    1. Hi Donna. No, I haven’t. I know my case is rare, as I was diagnosed at 55. I’ve been having these new bi weekly infusions with a medication called Lequembi. No changes yet but still hoping.

      1. keep going I am on the same. I have had issues between each biweekly sessions each MRI for me have reflected brain bleed then Brain swelling and possible stroke. But with Gods power I will continue in.

    2. I’m so sorry to hear that. I really have not felt any better from the infusions. I think I’m on my 6th one or so? I also have anxiety and depression to deal with. I just pray for the best every day. It’s good to have a circle of support.

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